Down syndrome is the most common chromosomal disorder, caused by the presence of an additional full or partial chromosome 21. This extra genetic material affects various bodily systems to differing degrees. Children with Down syndrome require regular follow-ups after birth to monitor their development, which is typically slower compared to other children. For adults with Down syndrome, aging occurs at a faster rate than in the general population. These conditions necessitate ongoing early intervention, rehabilitation, and frequent hospital visits, which can be physically and emotionally taxing for both individuals with Down syndrome and their families. Parents must work closely with medical teams to address their child’s issues while also supporting their child’s physical and emotional well-being to ensure effective treatment. However, navigating the complex healthcare system can be overwhelming. Multiple appointments across specialties can leave parents exhausted, making it difficult to communicate effectively with physicians. Furthermore, when new health challenges arise, families often feel uncertain about how to proceed. Providing support in disease management, as well as psychological and social aspects of care.
Recognizing these challenges, the Down Syndrome Foundation R.O.C. initiated partnerships with National Taiwan University Hospital (NTUH) in 2013 and China Medical University Hospital (CMUH) in 2015 to establish integrated care clinics for Down syndrome. These monthly clinics bring together over ten specialists, led by the genetics department, to provide comprehensive care for individuals with Down syndrome. Currently, the integrated care clinics in the northern and central regions operate by appointment only. The Foundation serves as the primary liaison with hospitals, with medical case managers, who hold professional nursing certifications, assisting families. These case managers help address parents’ initial concerns, act as a bridge between families and medical professionals, and provide reassurance and guidance to reduce anxiety and feelings of helplessness. When social welfare needs are identified, case managers refer families to the Foundation’s social workers, who offer tailored consultations and support to ensure families receive holistic assistance during their medical journey.
The needs and challenges faced by individuals with Down syndrome persist throughout their lives. The collaborative efforts between NTUH, CMUH, and the Foundation ensure access to diverse and inclusive healthcare resources. The Foundation’s team of case managers and social workers acts as a vital link between families, hospitals, and available resources, extending the care network for individuals with Down syndrome. Additionally, parent volunteers in the clinics provide companionship and share their experiences, offering invaluable support and encouragement to families navigating the long journey of caregiving. Through these collective efforts, the Foundation aims to address the ongoing care needs of families, providing them with enduring support to walk further and stronger together.
Eligibility: Individuals with Down syndrome of all ages.
Clinic Hours
Northern Region – National Taiwan University Hospital: Third Monday of each month, morning sessions.
Central Region – China Medical University Hospital: Third Wednesday of each month, morning and afternoon sessions.
The Foundation continues to collaborate with hospitals to deliver patient-centric, holistic medical care, ensuring that individuals with Down syndrome and their families receive enhanced and continuous quality care!
For cases with related social welfare needs, the Foundation provides additional resource consultations and assistance to offer comprehensive support.
Service Hotline: 02-2278-9866
Recognizing these challenges, the Down Syndrome Foundation R.O.C. initiated partnerships with National Taiwan University Hospital (NTUH) in 2013 and China Medical University Hospital (CMUH) in 2015 to establish integrated care clinics for Down syndrome. These monthly clinics bring together over ten specialists, led by the genetics department, to provide comprehensive care for individuals with Down syndrome. Currently, the integrated care clinics in the northern and central regions operate by appointment only. The Foundation serves as the primary liaison with hospitals, with medical case managers, who hold professional nursing certifications, assisting families. These case managers help address parents’ initial concerns, act as a bridge between families and medical professionals, and provide reassurance and guidance to reduce anxiety and feelings of helplessness. When social welfare needs are identified, case managers refer families to the Foundation’s social workers, who offer tailored consultations and support to ensure families receive holistic assistance during their medical journey.
The needs and challenges faced by individuals with Down syndrome persist throughout their lives. The collaborative efforts between NTUH, CMUH, and the Foundation ensure access to diverse and inclusive healthcare resources. The Foundation’s team of case managers and social workers acts as a vital link between families, hospitals, and available resources, extending the care network for individuals with Down syndrome. Additionally, parent volunteers in the clinics provide companionship and share their experiences, offering invaluable support and encouragement to families navigating the long journey of caregiving. Through these collective efforts, the Foundation aims to address the ongoing care needs of families, providing them with enduring support to walk further and stronger together.
Eligibility: Individuals with Down syndrome of all ages.
Clinic Hours
Northern Region – National Taiwan University Hospital: Third Monday of each month, morning sessions.
Central Region – China Medical University Hospital: Third Wednesday of each month, morning and afternoon sessions.
The Foundation continues to collaborate with hospitals to deliver patient-centric, holistic medical care, ensuring that individuals with Down syndrome and their families receive enhanced and continuous quality care!
For cases with related social welfare needs, the Foundation provides additional resource consultations and assistance to offer comprehensive support.
Service Hotline: 02-2278-9866
